note: this is copy-pasted from my tumblr and is therefore formatted like a call for information. on tumblr its reasonable to expect a response; on a personal website not so much. i have been asked by people who are discovering they have the same or a similar problem to take what i learn from the process of trying to get this (apparently very rare) fixed and make it easily available. so cross-posting it here, where its more static, makes the most sense.

that was a lot of words to say: copy-pasted from my tumblr

original title:

very very specific call for information: anyone out there deal with out-toeing caused by external tibial rotation (duck feet from a fucked up tibia) AS AN ADULT?

im putting this out here because 1. there’s like no fucking information on the entire internet about adults who never grew out of a common childhood problem (unlike children, who self-correct by strengthening muscles, my tibia is an inherited condition. mom has it but not nearly as bad) and 2. i just want to know more! especially what im looking at for recovery.

e: im me from the future. this post is so long and boring and navel gazey so i added images in the hopes it might trick you into wanting to share it.

i only just started this process yesterday: after a series of free association google searches stemming from the fear that i had developed peripheral artery disease at age 31, i discovered symptoms i had been attributing to other random issues (pain radiating down leg? i must be bloated and pressing down on a nerve. pain in shins when i walk even for a short while or up a single flight of stairs? i must be out of shape and destroying my body. knees swollen with fluid in the 4th grade? bursitis, etc) could pretty much all be traced back to my fucked up leg.

my right leg (my right) is visibly fucked from the outside and always has been since i was born. the left is as well, although to a much less (and likely ignorable) extent than the right. i’ve know about this forever; my parents at one point took me to a doctor who was like “yeah she’s shaped like a twizzler” but didnt actually recommend any action. therefore, it was assumed by all that there was nothing we could do and i just had to suffer my junji ito uzamaki curse forever.

which would suck because it’s not great. my family was not receptive to any complaints i had about my body hurting growing up (to be fair there’s only so many times you can hear “but it hurts to exercise” from your sickly, pale, bespectacled, dweeby-ass kid before you cant take it anymore) so i just gave up on giving a shit about it. i’m going to start from the top bottom on symptoms/pain:

  • sometimes i walk with a limp because my hip and knee joint would work in tandem to develop a sharp pain that makes putting weight on it hard.
  • during my period, i usually end up with at least a day or two where i get deep toothache like pain in my thigh. its always there, not throbbing, and it just. aches.
  • for some reason my body favors it so when i’m standing i find myself almost completely leaning on it (which just makes it hurt more later). i can feel myself fucking my knees up when i do this because of how it has to shift around the twisted bone.
  • my knees swell up every time i kneel and put weight on them (growing up catholic made this excruciating).
  • walking is a nightmare. i usually try my best to pretend like my shins (specifically) aren’t screaming from mild exertion. i bought a step machine thinking i was just out of shape and a big whiner but it didn’t ever get better no matter how much and how consistently i did it. i though i was just assigned a really dogshit corporeal form that wasn’t built for improvement.
  • dont even think about running, buddy. i flip flap around like i’m wearing clown shoes AND it hurts like a bitch.
  • speaking of which, i also trip and fall on my own feet a lot. the doctor asked me this like “you don’t find yourself falling a lot while walking, right?” and i had to laugh because i eat shit at least 2x a month. i have a huge scar on my foot from last year.

now im about to upload some pictures of my legs. try not to scream. ignore the bruises, i spent all day yesterday/day before completely re-arranging my office so i beat the crap out of my legs lol.

 

here they are together, standing comfortably. i’m using the edge of our ugly tile as a straight edge for reference.

 

here’s the left one. i have no idea if this is normal. the doctor i saw yesterday said it was “less pronounced” on this side. i agree.

 

i look like i’m uploading instructions on how to hokey-pokey. anyway: right leg in. notice how it is, indeed, fucked up when lined up against the edge.

 

and here’s the knee straight. i really thought this was normal and i just had to deal with it for the rest of my life lol. i mean i still might uhhh let’s find out.

I AM LOOKING FOR INFORMATION FOR ADULTS:

pretty much everything online is for kids with assurances that they’ll “grow out of it” and absolutely no info otherwise for the rest of us. now for my QUESTIONS:

-which surgery would be done to correct this?

-i am an american, any idea what surgery cost might look like? (lol ignoring insurance, i want to see if im even close to the ballpark of it being feasible)

-how long is the surgery recovery time?

-can physical therapy correct this? if so, how long would it take?

-can you direct me to more information on living with out-toeing/duck footing/external tibial rotation? how can i manage symptoms?

-does anyone want to study me, because apparently im a rare specimen. im minting myself as an nft or whatever. fuck

ok thank you.

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